Staying healthy with Pfeiffer Syndrome

Staying healthy with Pfeiffer Syndrome

Pfeiffer syndrome is a very sad disease that can have strong effects on both the parents and the child. We have to learn how to cope with it, and keep our child healthy through thick and thin. Though we don’t always have all of the happiness in seeing these children suffer for something that is not their faults, we can become stronger by helping them through life, and keeping them healthy. So how exactly do we treat them like everyday people? They are obviously just like everyone else, but people have a hard time seeing this and allow their curiosity to take over which causes staring and talking. Not something a child with Pfeiffer syndrome should have to deal with; they already have so many problems. In order to help them, we have to treat them normal and keep them healthy. My overall plan to combat this disease in any way possible is to keep building strong proteins in their bodies with a good diet plan, also to keep up with vitamins and minerals to just hope that one day the healthy form in which they live their life will help them overcome obstacles and possibly start regenerating their cells. But of course this may not be possible and I may be wishing too much.

I have been working with kids that have Pfeiffer syndrome for quite some time, and some of them are truly just as normal as any other kid! Type l Pfeiffer has all of the intelligence that a normal child would have, the only thing different about them is the way they look. With bigger eye sockets, slightly deformed sculls they look almost normal and I believe it is wrong to say that they are different. However with type ll and type lll the looks of common humans are almost not present, type ll having a clover shaped skull and almost closed eyes it is harder for them to live a normal life. It is also impossible to have certain experiences. Both type ll and type lll have a much higher risk of dying at a young age because there are too many deficiencies in their bodies, which is why we have to have them on a strict diet that consists of foods in all different food categories.

So when it comes to diet, I would recommend having a high protein diet most definitely. Proteins help build up the cells in your body and could potentially help reverse the process that is Pfeiffer syndrome. However I am not going to say this is a fact because I do not know for sure, I am no scientist. However I am a nutritionist and I know what type of foods can help heal. They will need to be on a lot of vitamins, some vitamin a, vitamin b and vitamin c. I also recommend a lot of vegetable as they help fight against disease, broccoli specifically helps fight against more disease than any other food available.